Unexpected Ultrasound Results

Well, the results of the ultrasound were unexpected.

I have a fibroid.

From what Dr. Google has told me, a fibroid isn’t a huge deal, as in it’s nothing overly scary and they actually occur surprisingly frequently in women of childbearing age.  Apparently something like 99% of fibroids do nothing other then cause problems with periods which can in turn cause problems with conceiving (please don’t take my word on that, I am not a medical doctor, just paraphrasing Dr. Google).  But, we aren’t trying to have kids anymore so conception problems aren’t really problems for us.  The period problem is exactly what I’m annoyed about.  I’m curious, as many in the infertility world experience fibroids, does anyone else have experience with fibroids?  Is there anything I should know ASAP? I have to admit, the thought of having a growth in my body that shouldn’t be in my body has caused some underlying fears, because random growths are rarely, if ever, a good thing.

But, what it does mean is a referral to gynecologist.

Which in turn means I’m forced into a world of retelling and reliving our recurrent pregnancy losses.  I’m forced into reviewing all my old testing results.  I guess maybe the list of every procedure and every test result that I’ve carried around in my phone for the last 5+ years will finally come in handy?

And I know I’ll end up questioning the Sonohysterogram (SHG) or Hysterosalpingogram (HSG) results that just a few years ago indicated that my uterus was basically perfect and definitely fibroid free according.  I cannot help but wonder, could I have had a fibroid problem before that all the doctors and all the scans just missed?  Rationally, I know I didn’t.  I had too many tests confirm there were no problems with my insides to even bother seconding guessing it now.  And even more importantly, I know that it wouldn’t change where we are today – one and done.  And, I wouldn’t want to change where I am today, because today I am Little MPB’s mother.  I think it’s just my insatiable search for answers that makes me wonder.

I have to admit, I’m dreading having to even step into a gynecologists waiting room post infertility, because I’m pretty sure sharing the waiting room with pregnant women will cause old and ugly jealously feelings to resurface.

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17 Comments on “Unexpected Ultrasound Results

  1. Ah, MPB, that stinks. I totally get the desire to not sit in waiting rooms full of pregnant women and have to relive all your old negative experiences and jealousies. These days when I go to the waiting room of my local OBGYN I sometimes see women sitting there looking sad, sometimes with a partner, and I am so self-conscious about being hugely pregnant. I just want to go over and talk to them, or at least wear a sign saying “It was not easy to get here, I swear,” but there’s just no non-weird way to do it. But boy, is it fresh in my mind what a slap to the face seeing a waiting room full of pregnant women can be. I still feel it sometimes, even though it makes no sense.

    Wishing you all the best as you deal with this new wrinkle. I totally agree with you that fibroids are probably not a big deal but still creepy. My only experience with them is that my RE thought I might have them and had ordered an MRI to check before doing a hysteroscopy, but then I got pregnant and here I am (shrug). So I might have fibroids, but so far they haven’t affected this pregnancy and haven’t caused me any other issues that I know of.

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  2. Solidarity. I’m dealing with increased pain and bloating and weird bleeding due to endo (or maybe something else), even though I’m on the pill and I’m not supposed to bleed. I’m dreading my upcoming annual exam and the tests with the gyn that I know will follow. My anxiety always spikes in the waiting room.

    As for fibroids, I’ve never had one, but my good friend has been living with one for years. She is able to control the bleeding with birth control, but she may have it removed soon due to the size. It’s so big, it makes her look about 5-6 months pregnant, and she’s not cool with that anymore. My coworker also had fibroids and recently had a hysterectomy because they were not able to control the bleeding. Whatever happens, I’m sure you will be okay. I just know how hard it is to relive all the pain of the past (and present) to deal with this stuff. It sucks. ((hugs))

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  3. I used to have, what I was told, was a size-able fibroid when I was pregnant with Luke. It would also come up in ultrasounds but I was always told it’s super common and wouldn’t cause any issues with anything. And now that you mention it no one has said anything about it since his pregnancy. I guess it went away? Now I’m curious!

    And I’m sorry about what this referral will mean. It’s not fun and still to this day I feel like an imposter in those waiting rooms and feel for those there feeling the way I have before.

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  4. Ask for a first apt of the day and explain you have a history of infertility IF you need to. Take your medical history, make it terse and succinct, and print it out so you can hand it over and not need to talk/walk through it. Print and take 3 copies, one for nurse person, one for doctor in case, one you can look if question comes up.
    IF they want to surgically remove fibroid ask LOTS of questions about their methodology as there is some controversy about some current methods and you need to know what those are before deciding what you want!
    Some fibroids can be ignored and they can disappear but I do not know what the variables are.
    Infertility and loss are always with us but over time we can learn to cope more easily. And no one has a timetable for that! Much understanding and support to you.

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  5. I am so sorry for what you are having to endure. Going through infertility is one of the toughest things I think a person can go through, me included and reliving it must be just as difficult. Thinking of you!

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  6. Im sorry about your fibroid. I went through the same questioning once it was discovered…could it have been there all along & missed by the tests??? But like you, I realized the questioning was not going to get me anywhere now. As far as the fibroid goes and treatment, I believe it depends on what type of fibroid it is. Mine was a submucosal fibroid and it affected reproduction so I had to have it removed. You could revisit some of my posts from back in March 2015/April 2015 to learn more. If I hadnt been concerned with conceiving I dont believe I would have needed any treatment. I was asymptomatic & didnt have pain or bleed, etc. though. Seems fibroids are so unique to the individual. I will be thinking of you, please reach out if I can be of any help ❤️

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  7. I have a fibroid that’s increased and decreased in size over the years – I’ve had it since I was 17. It’s ranged in size depending on hormones and not just from pregnancy. Albeit it was HUGE during my twin pregnancy (size of baby’s A head) so much so that baby A was stuck between it and my uterine wall, it’s also in my lower uterine segment thus a terrible position for delivering naturally.
    Hormones have played a role in its size, it was smallest when I was doing a keto based diet (also positive impact on my endo). The fibroid does cause me to have more painful periods (again fibroid + endo).
    You’ll have to weigh the risks associated with the fibroid removal if that’s what you’re being recommended. I saw a specialist in Calgary who discussed the risks for me; ultimately recommended I not as we were about to proceed with IVF in a few short months. Risk being that removal of fibroid could damage uterus and then potentially require removal and then end of baby carrying dream.

    Fibroids are very common and also very unique to each person; every case is different. Best of luck at your appointment.

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  8. I’m still not a fan of the Ob waiting room. Hope everything turns out okay. I’m not familiar with fibroids, though ovarian cysts run in my family.

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  9. When I was going through all the fertility stuff, I had the laparoscopic surgery to rule out endo. Thankfully I didn’t have it, but they did find a fibroid on the outside of my uterus. I was told it’s common and no big deal.. They told me it was riskier trying to remove it than to leave it alone.. so.. 🤷🏻‍♀️ that was the end of it. Honestly, I forgot about it until I read your post.
    I can’t even imagine having to answer all of those questions again. Could you maybe just write it out and hand it to the nurse to read and fill in maybe? I would THINK they would understand given what you’ve been through..

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  10. I’ve had 16 fibroids removed, and the surgeries caused Ashermans, which ruined our plans of IVF using donor embryos. My periods used to be really, really heavy and pretty painful, and I had occasional breakthrough bleeding, but now that I have Ashermans instead of fibroids, my periods are incredibly light but also incredibly painful for a good 3-4 days, to the point where I sometimes can’t sleep. But yes, fibroids are really, really common, and a lot of of the time they go undetected until you decide to try IVF. Good luck, and don’t let them pressure you into surgery unless it’s something you know you want!

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  11. I had a large fibroid removed (on advice of my RE) before getting pregnant. It was the size of a grapefruit. Despite its size, it caused no symptoms. The only reason they took it out was that it was in an area that would affect pregnancy/fertility.

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  12. What do they usually do for fibroids? Does it just mean crappy periods or do they remove them? If they don’t do anything for them and you aren’t trying to get pregnant, I could see just not going to the OB. I don’t see why you would need to recount every last infertility detail if it doesn’t have anything to do with the fibroid. Just say you have gone through the infertility ringer and if anything is relevant from your history to let you know. Maybe when you call to schedule it, ask what is the least busy time of day so you can avoid the onslaught of pregnant people.

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  13. I’m so sorry this is going to be opening up old wounds for you. That is never fun.

    As for the fibroid, I have no medical advice and I hope that your appt goes smoothly and you get some answers!

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  14. I have several; it’s estimated more than 80% of women of color suffer from them. Nearly all of my friends have them and have endured pain, excessive out unpredictable periods and varying degrees of infertility problems. Mine were diagnosed after I was determined to be infertile. Lots of different mechanisms for treatment, some invasive, some not. I would echo writing your history and actually you might consider sending it over the day before the appointment with a cover letter saying that your history is difficult to talk about and this can help to reduce your discomfort while still achieving the goal. A good office will appreciate the heads up and will want you to be comfortable. All the best friend.

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  15. I’m sorry you’re going to have to go through all this again. I will tell you though that when I was pregnant with C I had a fibroid that they kept an eye on at the top of my uterus. It disappeared after she was born, and hasn’t returned. They told me it’s fairly common and not a big deal. So hopefully yours will turn out the same way, and be nothing to worry about!

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