What I’ve Learned from the Infertility Blogging Community

Anyone who follows my blog knows, that I think of myself as living on the edge of the infertile community. This is because the majority of people experiencing infertility have problems getting pregnant, but this is not our situation. We are really freaking good at getting pregnant and really freaking bad at staying pregnant. So, while I don’t really fit it, I still see the same RE doctors; I still am learning to speak the same language (or at least parts of it); and, I’m ever so grateful that so many people in the infertility community are accepting me even with these differences.

So, I thought I’d take some inspiration from you all, and share s summary of what you have all taught me since I started blogging:

  1. The infertility community loves acronyms! AF, IF, TTC, TWW, TTCAL, RPL, etc. Some bloggers have put together a list of acronyms, and for this I am grateful!
  2. Unsolicited advice to an infertile couple can be hurtful, regardless of how well intentioned. For example, do not tell infertile couples to adopt. Some couples, most actually, have a desire for a biological child. Furthermore, adoption is scary, and expensive.
  3. Many of us are scared to share our stories in our non-blogging lives, and almost all of us wish our real life support systems were better equipped to be more understanding of our unbelievably difficult situations. This is a bit of a catch 22, because most people don’t experience infertility, we don’t share our stories and therefore most people have no idea how to be supportive. (If you want to read more, I’ve written a few posts on that here and here).
  4. Infertility is incredibly isolating experience due to modern society emphasizing having children, at all costs. Everyone wants to know when you are having kids, how many kids, etc. But no-one is ready to handle the truth of we are trying, but it’s not working. In my experience, if I want to stop a conversation and see people squirm awkwardly, I just need to be honest about our recurrent miscarriages when you are asked.
  5. Anyone going through this greatly values the support of the infertility blogging community.  We love the advice and the comments that others share based on there experience.  We feel a sense of connectedness and understanding that we just don’t get from the fortunate fertile people.
  6. IUIs and IVF is unbelievably painful and expensive. I take the fact that couples are willing to go through these treatments as a testament to the desperate desire for children.
  7. There are potential medical options to having children – IUIs, IVF, IVF with genetic testing, donor sperm, donor egg, surrogacy, etc. There are many options out there, each couple chooses what is best for them given their specific circumstance and just because one option is best for one couple, it may not be best for another.
  8. People chose to live childfree. As someone seriously considering this option, I can assure you it is not an easy decision. For the bloggers who have made this decision, from what I can tell, it is the best of the worst options, and they must learn to live a very different life then what they imagined.
  9. Others do not have to agree with the decisions of an infertile couple, you just need to support them and let them know you love them.
  10. No-one loves scheduled procreation sex. We do what we have to do, but we pine for the days of random sex based purely out of desire.
  11. Our lives revolve around our infertility and our desire for children. Our schedules are literally dictated by medical appointments (RE appointments, blood work, exploratory procedures, ultrasounds, etc.). Our long term life plans all revolve around a simple thought of what if we’re pregnant? We avoid long term plans – like buying expensive last minute flights to friend’s weddings rather than booking months in advance like everyone else, because what if we are pregnant then we definitely don’t want to be travelling even if it is to a wonderful exotic place like Italy or Peru.
  12. Miscarriage is one of the hardest things anyone will ever experience. I can only imagine that after years of trying unsuccessfully to end up having a pregnancy end in miscarriage would be extra painful.
  13. Many of us bought the family house to fill with our future kids, and so many of us also have “the room.” The baby room, without a baby. Some are debating the house purchase, and are unsure of what to do because a house with space for children isn’t needed if there are never children. Some have bought important baby things for that room and for that elusive baby. Some have turned it into a storage room. Some of us shut the door and do our best to ignore its existence.   Some re-paint the room in an attempt to re-purpose it. Some of eventually sell the house with the rooms and move on. The room is a literal place that illustrates what we do not have and may never have. The room sucks!
  14. We all have the utmost appreciation for our medical teams. Each women is different, but that may include family doctors, RE, psychologists/therapists, grief counselors, naturopathic doctors, acupuncture, etc. Most have us have become strong advocates for our own health, often questioning our doctors and possibly driving them slightly crazy. And, even though many of us have had some sort of negative experience within our medical system, for the most part, we are forever grateful for all the support we receive from our fertility treatment.
  15. The cost of fertility treatments can be crippling. This varies from couple to couple and may be exaggerated due to medical systems in different locations, but very few are able to undergo months of testing and months of medicated cycles, IUIs and IVF without having some sort of financial consequence.
  16. Every single infertile women, regardless of what they are experiencing, absolutely hate being told just relax!! This is the absolute worse advice anyone can ever give an infertile couple for 2 main reason. First, if it were that easy, we wouldn’t be in this predicament. Second, please provide constructive advice on “how to relax” if you are going to give such ridiculous advice.
  17. Regardless of our individual journey, we all have scars from this experience.   But, we also all try to hold on to hope. Whether its hope for a future child, hope for this cycle to work, or even hope for a miscarriage to end quickly, we all hope.

I could keep going on this list, but for today I’ll end it with the thoughts of hope that every single infertility blogger, myself included, holds onto.  Hope seems to drive us and helps us continue through our personal infertility struggles.

 If you like this post, please feel free to share it and please return to myperfectbreakdown.com to follow my journey.

14 Comments on “What I’ve Learned from the Infertility Blogging Community

    • The room is a pretty personal one for me, but I refuse to change it into something else until/if we choose to stop trying and choose not to adopt. The room sucks, but in a way its also a reminder of what we hope for.

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  1. It’s like you’re in my head! Lol.. I think you’ve said perfectly what it feels like and the house, wow, we had spare bedrooms for many years that we just didn’t use. And we too discussed at length of how we would spend our life if we decided to stop trying and I am beyond thankful everyday that we didn’t have to actually go through with any of it. I think infertility and recurrent loss create such similar – if not the same – feelings and battle wounds that you can’t differentiate them.

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    • Thanks! So, often I think other bloggers are also in my head – all of us going through infertility seem to have (mostly) similar types of thoughts. We seem to be bound in our shared circumstances, but stories like yours give us (or at least me) hope. 🙂

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